Finally on Monday, April 14, I received the 5th treatment of the study drug. I was two weeks out from the optimal range, but then I have never been in the optimal range. Platelets were still low (88,000); however, an amendment to the trial protocol lowered the threshold to 75,000, so I could have treatment. Plus, my doctor decided to hold the carbopatin chemo drug as that’s been the culprit in the lower platelet counts.
That meant a much shorter infusion time (30 min) because there are no pre-meds in the protocol for the study drug. Still, my day was a long one: I arrived at 8:15 and left at 3. Why, you wonder? The drug I’m taking is one that’s in a trial and not yet approved by the FDA (although the study itself is approved), and checking and rechecking of numbers and requirements are involved to ensure adherence with the trial directives. The procedure can’t be rushed, and that’s good for everyone. Besides, now that I’m used to the process, I understand that the wait is necessary, and I’m impressed with the professionalism of the oncology staff at Sarah Cannon Research Institute. I never feel forgotten because someone is always keeping me updated.
I have one more treatment in this 6-cycle trial. I can’t wait to see what happens next, but I’m told that I can continue with the study drug since I’ve had such good results. For that I’m thankful and I pray for continued good results.
Praise God from whom all blessings flow….