It’s been 5 weeks since my last infusion of the trial drug, and 2 weeks since I was supposed to start cycle 4. Here’s what’s going on with me as of today:
- I feel fine, more than fine actually. I have NO pain.
- The cornea specialist told me last week that 95% of the blisters on my corneas were gone, which is exactly how long he had said it would take (about 10 days after I stopped drug).
- He said improvement in vision should follow, and as of today my nearer vision is becoming clearer; I expect the far vision to improve soon also.
- My C-125 marker has been on a slight increase over the last three weeks—103 to 127 to 161 on Nov 4. Normal is under 30, but I haven’t been there since early in the summer when trial 2 was still working.
- I’ll have CT scans in a week (Nov 18) to see what the three large tumors are doing, and then I’ll meet with Dr. Burris to discuss treatment based on what the scans show.
- Options discussed today are to reduce infusion dosage by a third or to modify the trial or to begin another one. My doctor and the drug company will make a recommendation based on what they think is best, both in terms of quality of life and of increased side effects. They are all concerned about how few good days I’ve had and about the cornea issues.
- I’m acutely aware of the power of prayer in my life. Thank you, and thanks be to God.
- It feels weird to post this, but several people have asked if what I said in the ThanksLiving upper school chapel on Nov. 4 was recorded. For those who want to listen, chapel talks are posted on our media website at media.brentwoodacademy.com.
Everything is another opportunity to “give thanks in all circumstances because this is the will of God for [me] in Christ Jesus” (1 Thessalonians 5:18).